The Red – Epic Edition

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melissa divietri abstract art
melissa divietri abstract art

โ€˜Patience is a Virtue;โ€™ always what my mother would remind me. Learn to have patience for proper timing.  โ™ฅ๏ธ

I have nothing more to pressure other than I AM the most patient person considering the difficulty of my life. My daily activity goes through the hoops of fire that I must overcome to upkeep my medical attention & independence for a healthy lifestyle. I tend to shuffle my experiences in strides. As I am growing healthier & confident in my disability suit; the moment of satisfaction will only make the pot sweeter. ๐ŸŒน๐ŸŒน๐ŸŒน๐ŸŒน๐ŸŒน

I am standing confident in my body suit that projects a fierce attitude of power. Thereโ€™s pressure to pursue this life as a positive influential person, in other words โ€œheroโ€ for what our awakening world needs in a role model. The expectation that I put on myself to be the sweetest hunni is beyond stressful; a daily mind game of chess. I just wanna hide away pretending that nothing is wrong with me. I am constantly dancing in circles from one emotion to the next; with upโ€™s & downโ€™s; ready to let myself go.. I have no fear; only faith. I move with purpose & intentions based on goal setting. Itโ€™s possible that my observers may not realize that I was born with a rare disease that creates additional stress from mobility & medical care. 

โ€˜Life with Sacral Agenesisโ€™, this rare disease affects the spinal cord by limiting the ability to walk without devices or adaptive equipment. For almost 15 years of my early childhood, I was in a wheelchair with full body braces worn at night, and then a walker device during the dayโ€ฆ Now on this day, Iโ€™ve overcome 14 surgeries that have reconstructed my internal system becoming more independent(ish); using fore-arm crutches as mobility.

Iโ€™ve been a warrior since Day 1; the day where my mission had landed. Iโ€™ve struggled to accept my physical differences or my past trauma. Iโ€™ve never had the chance to meet my biological parents. 

Even though I have this feeling of unworthiness that instills from past trauma; I’ve never been afraid of dying… only been in fear of not trying – I want to fill my soul with satisfaction by doing something that matters to me..and give it all I have despite my physical challenges that I face as a disabled individual. I will keep moving until my body hits the floor from exhaustion because that is the warrior in me.

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