Life with a Permanent Disability; Sacral Agenesis

Welcome to a space created from experience, resilience, and the unwavering spirit to keep going — no matter the obstacles. “Life with a Permanent Disability” is more than a phrase. It’s a journey — filled with daily adaptations, silent battles, moments of joy, unexpected wins, and the drive to advocate for change.

On this page post, you’ll understand the reality of navigating the world with a permanent disability. From mobility challenges and inaccessible environments to moments of growth, community, and empowerment — this platform is here to educate, inspire, and amplify the voices of the disabled community.

Support My Journey Toward Safe, Independent Mobility ♿️

gm ☀️ My name is Blue, and I’m reaching out for support during a major transition in my life.

I was born with sacral agenesis — a rare and permanent condition that affects the development of the lower spine and legs. Even with the many physical challenges that come with it, I’ve lived boldly — traveling to 38 countries, creating vibrant abstract art, and sharing my story as a motivational artist to uplift others around the world.

But in November of last year, my life took a dramatic turn. I survived a traumatic boating accident that left seven of us ejected from the vessel. Since then, I’ve faced new layers of physical and mental trauma. My body went from wearing full braces to using a walker, then forearm crutches — and now, I rely entirely on a wheelchair and medical devices. My right foot still causes excruciating pain when I attempt to stand, so my healing has been slow and ongoing.

How to donate

CashApp: https://cash.app/$BEQArtist

Venmo: https://account.venmo.com/u/Blueeyequeen

Zelle: use email address (melissa.divietri(at)gmail(dot)com)

Apple Cash: please contact for email

GoFundMe: https://www.gofundme.com/f/donate-to-blues-accessible-transportation-fund?attribution_id=sl:ef85e95b-98f0-484e-8b38-880b3ae29ef1

If you would like to donate and the information is not available, please contact.

For the past year, I’ve been fighting for solutions — applying for disability grants, exploring crypto-based support options, seeking out vocational rehab programs, and consulting with physical medicine specialists. I’ve exhausted nearly every resource I could find. But despite all that, the truth is: the gap is still too wide. I need help to bridge it.

A major barrier to my independence is reliable and safe transportation. I’ve faced significant setbacks due to airlines damaging the medical equipment I depend on. My wheelchair was broken by Silver Airways, and Viva Air destroyed my scooter — both of which took months to acquire and weren’t fully reimbursed. These devices aren’t luxuries — they are lifelines.

I need a wheelchair-accessible vehicle with hand controls to protect my equipment and allow me to safely get to art shows, speaking engagements, doctor visits, and healing sessions. Without it, I risk further injury and constant transportation anxiety.

DAY IN THE LIFE (WATCH)